The Kahnawake Schools Diabetes Prevention Program Center for Research and Training is committed to understanding the impact and outcomes of our work, providing us with an evidence-based approach to decision making. Over the years, we have completed many studies, within multiple fields and disciplines. Please find the links and downloadable PDF's to our work regarding diabetes prevention spanning over 30+ years. 

Publications 2020-Present.

Splicer, B., Kirby, C., & Fraser, S. (2022). Your Mandates Are Not Ours. In Unravelling Ethics in Human Rights Work: Ongoing Conversations. Eds Neil Bilotta, Christina Clark-Kazak, Shayna Plaut, Lara Rosenoff-Gauvin and Maritza Felices. UBC Press, Canada. 
Dubnewick, M., Wasyliw, D., & Schaefer, L. (2021) Ethical considerations when negotiating entry in community-based research. Leisure Sciences.
Lopresti, S., Willows, N. D., Storey, K. E., & McHugh, T. F. (2021). Indigenous Youth Mentorship Program: key implementation characteristics of a school peer mentorship program in Canada. Health promotion international, 36(4), 913–923. https://doi.org/10.1093/heapro/daaa090
McBeath, B., Franks, O., Delormier, T., Périllat-Amédée, S., McComber, A., Abigosis, T., Leafe, D., Macaulay, A., & Lévesque, L. (2021). Reflecting on the use of Concept Mapping as a Method for Community-Led Analysis of Talking Circles. Turtle Island Journal of Indigenous Health, 1(2). https://doi.org/10.33137/tijih.v1i2.36171​
Périllat-Amédée, S., Delormier, T. W., Flamand, S., Ottawa, G., McBeath, B., McComber, A. M., Macaulay, A., Lévesque, L., & Flamand, D. (2021). Atikamekw Nehirowisiw Mirowatisiwin: Identifying the Strengths of the Manawan Community to Promote Wellness and Healthy Lifestyles. Turtle Island Journal of Indigenous Health, 1(2). https://doi.org/10.33137/tijih.v1i2.36135
Wasyliw, D., Schaefer, L., Koch, J., McGregor, A., & Deering, P. (2020) “The only thing Mohawk in the classroom was the students:” A Narrative Inquiry into Physical Health Education Teacher Education in Canada. Thresholds in Education Special Issue: Critical Health Education in Critical Times: Pedagogy, Praxis, and Possibilities. (ISSN 0196-9641)
Wasyliw, D., & Schaefer, L. (2020). Chapter 3. Re-Conceptualizing Physical Health Education Teacher Education Through Haudenosaunee Values. In A. Sammel, S. Whatman & L. Blue (Eds.) Indigenizing Education: Discussions and Case Studies from Australia and Canada. Springer: Singapore.

Publications 2010-2o19

Wasyliw, D., & Schaefer, L. (2019). Inquiring into Indigenous Knowledge: Implications for physical health education teacher education (Abstract). Revue phénEPS-PHEnex Journal, Volume 10 (Issue 3), pp. 9. Retrieved from https://ojs.acadiau.ca/index.php/phenex/article/view/4071
Macridis, S., Bengoechea, E., Jacobs, J., McComber, A., & Macaulay, A. (2019). School Travel Planning with the Kahnawake Schools Diabetes Prevention Project: Partnership Perspectives. Collaborations: A Journal of Community-Based Research and Practice. 2. 12. 10.33596/coll.34. 
Murdoch-Flowers, J., Tremblay, M. C., Hovey, R., Delormier, T., Gray-Donald, K., Delaronde, E., & Macaulay, A. C. (2019). Understanding how Indigenous culturally-based interventions can improve participants' health in Canada. Health promotion international, 34(1), 154–165. https://doi.org/10.1093/heapro/dax059
Delormier, T., McComber, A.M. & Macaulay, A.C. (2018). Kahnawake Schools Diabetes Prevention Project Code of Research Ethics: Development and application, in: Toolbox of research principles in an aboriginal context: Ethics, respect, fairness, reciprocity, collaboration and culture. First Nations of Quebec & Labrador Health and Social Services Commission (FNQLHSSC), Université du Québec en Abitibi-Témiscamingue, Université du Québec en Outaouais (https://files.cssspnql.com/index.php/s/8aBAkl1pjHeOWd0)
Khayyat Kholghi, M., Bartlett, G., Phillips, M., Salsberg, J., McComber, A. M., & Macaulay, A. C. (2018). Evaluating an Indigenous health curriculum for diabetes prevention: engaging the community through talking circles and knowledge translation of results. Family practice, 35(1), 80–87. https://doi.org/10.1093/fampra/cmx068
Wasyliw, D., & Schaefer, L. (2018). Advantages of Identifying & Incorporating Indigenous. Ways of Knowing in Physical Health Education Teacher Education (Abstract). Revuephén EPS-PHEnex Journal, Volume 10 (Issue 1), pp. 1. Retrieved from https://ojs.acadiau.ca/index.php/phenex/article/view/1916
Hovey R.B., Seganathy, E., Phillips, M., Mizzau, M., Poulette, A., King, M., Macaulay, A.C. & Gruber, R.A. (2018). Descriptive inquiry into sleep and the sleep habits of children within an Indigenous community. J Indigenous Health; 13: 42-64
Tremblay, M.C., Martin, D.H., McComber, A.M., McGregor, A., & Macaulay, A.C. (2018). Understanding community-based participatory research through a social movement framework: a case study of the Kahnawake Schools Diabetes Prevention Project. BMC Public Health. 12;18(1):487. doi: 10.1186/s12889-018-5412-y​
Salsberg J., Macridis, S., Delormier, T., Hovey, R.B., Andersson, N., McComber, A.M. & Macaulay, A.C. (2018). Engaging communities to identify needs and develop solutions: Participatory research incorporates community voice in all aspects of health research decision-making. In N Arya & T Pigott (Eds.), Pursuing Health. Edmonton, AB: Athabasca University Press.
Hovey, R. B., Delormier, T., McComber, A. M., Lévesque, L., & Martin, D. (2017). Enhancing Indigenous Health Promotion Research Through Two-Eyed Seeing: A Hermeneutic Relational Process. Qualitative health research, 27(9), 1278–1287. https://doi.org/10.1177/1049732317697948
Salsberg, J., Macridis, S., Garcia Bengoechea, E., Macaulay, A. C., Moore, S., & KSDPP School Travel Planning Committee (2017). The shifting dynamics of social roles and project ownership over the lifecycle of a community-based participatory research project. Family practice, 34(3), 305–312. https://doi.org/10.1093/fampra/cmx006
Salsberg, J., Macridis, S., Garcia Bengoechea, E., Macaulay, A. C., Moore, S., & KSDPP School Travel Planning Committee (2017). Engagement strategies that foster community self-determination in participatory research: Insider ownership through outsider championship. Family practice, 34(3), 336–340. https://doi.org/10.1093/fampra/cmx001
Tremblay, M. C., Martin, D. H., Macaulay, A. C., & Pluye, P. (2017). Can we Build on Social Movement Theories to Develop and Improve Community-Based Participatory Research? A Framework Synthesis Review. American journal of community psychology, 59(3-4), 333–362. https://doi.org/10.1002/ajcp.12142
Macridis, S., Garcia Bengoechea, E., McComber, A. M., Jacobs, J., Macaulay, A. C., & Members of the Kahnawake Schools Diabetes Prevention Project-School Travel Planning Committee (2016). Active transportation to support diabetes prevention: Expanding school health promotion programming in an Indigenous community. Evaluation and program planning, 56, 99–108. https://doi.org/10.1016/j.evalprogplan.2016.02.003
Ramsden VR, Crowe J, Rabbitskin N, Danielle Rolfe D, Macaulay AC​.  Authentic Engagement, Co-Creation and Action Research. How to do Primary Care Research. Editors: Felicity Goodyear-Smith & Bob Mash on behalf of WONCA. Publisher: CRC Press, Medicine, Taylor & Francis Group.
Hogan, L., Bengoechea, E.G., Salsberg, J., Jacobs, J., King, M. & Macaulay, A.C. (2014), Using a Participatory Approach to the Development of a School-Based Physical Activity Policy in an Indigenous Community. J School Health, 84: 786-792. https://doi.org/10.1111/josh.12214
Salsberg, J., Macridis, S., Delormier, T., Hovey, R., Andersson, N., McComber, A., & Macaulay, A.C. (2018). Engaging communities to identify needs and develop solutions: Participatory research incorporates community voice in all aspects of health research decision-  making. In Health Determinants of Indigenous Inner City and Migrant Populations of Canada. Eds Neil Ayra and Thomas Piggott. Canadian Scholars Press.  
Murdoch, J. (2011). Understanding how workshops transform participants' lives by exploring their perceived experiences: the Kahnawake Schools Diabetes Prevention Project (Thesis MSc) McGill
Cargo, M., Delormier, T., Lévesque, L., McComber, A., & Macaulay, A. (2011). Community Capacity as an "Inside Job": Evolution of Perceived Ownership Within a University-Aboriginal Community Partnership. American journal of health promotion : AJHP. 26. 96-100. 10.4278/ajhp.091229-ARB-403. 
Naqshbandi, M., Harris, S.B., Macaulay, A.C., Comeau, J., Piche, J. & Montour-Lazare, D. (2011). Lessons learned in using community-based participatory research to build a national diabetes collaborative in Canada. Progress in Community Health Partnerships: Research, Education, and Action; 5.4: 405-415

Publications 2000-2009

(KSDPP as case study) Parry, D., Salsberg, J., Macaulay, A.C. (2009). A Guide to Researcher and Knowledge-User Collaboration in Health Research. Ottawa: Canadian Institutes of Health Research
Delormier, T., Frohlich, K. L., & Potvin, L. (2009). Food and eating as social practice--understanding eating patterns as social phenomena and implications for public health. Sociology of health & illness, 31(2), 215–228. https://doi.org/10.1111/j.1467-9566.2008.01128.x
Mercille, G., Receveur, O., & Macaulay, A. C. (2010). Are snacking patterns associated with risk of overweight among Kahnawake schoolchildren?. Public health nutrition, 13(2), 163–171. https://doi.org/10.1017/S1368980009990711
Receveur, O., Morou, K., Gray-Donald, K., & Macaulay, A. C. (2008). Consumption of key food items is associated with excess weight among elementary-school-aged children in a Canadian first nations community. Journal of the American Dietetic Association, 108(2), 362–366. https://doi.org/10.1016/j.jada.2007.09.002
Cargo, M., Delormier, T., Levesque, L., Horn-Miller, K., McComber, A., & Macaulay, A.C. (2008). Can the democratic ideal of participatory research be achieved? An inside look at an academic-indigenous community partnership. Health Education Research, 2;23(5):904-14. ​https://doi.org/10.1093/her/cym077
Salsberg, J., Louttit, S., McComber, A., Fiddler, R., Naqshbandi, M., Receveur, O. Stewart, B. & Macaulay, A.C. (2008). Knowledge, Capacity and Readiness: Translating Successful Experiences in CBPR for Health Promotion. Pimatisiwin: A Journal of Indigenous and Aboriginal Community Health;6(1)
(KSDPP as Case Study) Potvin, L., Kickbusch, I., McQueen, D.V., Pelikan, J.M., Balbo, L., Abel, T. (2007) Managing uncertainty through participation. In: Modernity and Health. Amsterdam: Klewer.
Horn, O. K., Jacobs-Whyte, H., Ing, A., Bruegl, A., Paradis, G., & Macaulay, A. C. (2007). Incidence and prevalence of type 2 diabetes in the First Nation community of Kahnawá:ke, Quebec, Canada, 1986-2003. Canadian journal of public health = Revue canadienne de sante publique, 98(6), 438–443. https://doi.org/10.1007/BF03405434
Kirby, A., Lévesque, L., Wabano, V. (2007). A Qualitative Investigation of Physical Activity Challenges and Opportunities in a Northern-rural, Aboriginal Community: Voices from Within. Pimatisiwin: A Journal of Indigenous and Aboriginal Community Health. 5(1):5-24
Macaulay, A., Ing, A., Salsberg, J., McGregor, A., Rice, J.,  Montour, L. & Gray-Donald, K. (2007). Community-based participatory research: sharing results with the community. An example of knowledge translation from the Kahnawake Schools Diabetes Prevention Project. Progress in Community Health Partnerships: Research, Education, and Action. 1. 143-152. 
Cargo, M., Salsberg, J., Delormier, T., Desrosiers, S., & Macaulay, A. C. (2006). Understanding the social context of school health promotion program implementation. Health Education, 106(2), 85-97. https://doi.org/10.1108/09654280610650936
Macaulay, A. C., Cargo, M., Bisset, S. L., Delormier, T., Lévesque, L., Potvin, L., & McComber, A. M. (2005). Community empowerment for the primary prevention of type 2 diabetes: Kanienkehá:ka (Mohawk) ways for the Kahnawake Schools Diabetes Prevention Project. In M. L. Ferreira, & G. C. Lang (Eds.), Indigenous Peoples and Diabetes Community Empowerment and Wellness (pp. 407-433). Carolina Academic Press.​
Adams, A., Receveur, O., Mundt, M., Paradis, G., & Macaulay, A.C. (2005). Healthy Lifestyle Indicators in Children (Grades 4 to 6) from the Kahnawake Schools Diabetes Prevention Project. Canadian Journal of Diabetes. 29(4):402-409
Lévesque, L., Guilbault, G., Delormier, T., & Potvin, L. (2005). Unpacking the black box: a deconstruction of the programming approach and physical activity interventions implemented in the Kahnawake Schools Diabetes Prevention Project. Health promotion practice, 6(1), 64–71. https://doi.org/10.1177/1524839903260156
Paradis, G., Lévesque, L., Macaulay, A. C., Cargo, M., McComber, A., Kirby, R., Receveur, O., Kishchuk, N., & Potvin, L. (2005). Impact of a diabetes prevention program on body size, physical activity, and diet among Kanien'keha:ka (Mohawk) children 6 to 11 years old: 8-year results from the Kahnawake Schools Diabetes Prevention Project. Pediatrics, 115(2), 333–339. https://doi.org/10.1542/peds.2004-0745
(KSDPP as Case Study) Rachlis, M. (2004). Prescription for excellence : how innovation is saving Canada's health care system. 1st ed. Toronto: HarperCollins.
Levesque, L., Ing, A., Desrosiers, S., & Macaulay, A.C. (2004). Usefulness of a Previous Day Physical Activity Interactive Recall (PAIR) For Kanien'keha:ka Children: An Ancillary Study of the Kahnawake Schools Diabetes Prevention Project. CDA/CSEM Professional Conference, Oct. 27-30. Quebec City. Published Abstract. Canadian Journal of Diabetes. 28(3):269.
Lévesque, L., Cargo, M., & Salsberg, J. (2004). Development of the Physical Activity Interactive Recall (PAIR) for Aboriginal children. The international journal of behavioral nutrition and physical activity, 1(1), 8. https://doi.org/10.1186/1479-5868-1-8
Bisset, S., Cargo, M., Delormier, T., Macaulay, A. C., & Potvin, L. (2004). Legitimizing diabetes as a community health issue: a case analysis of an Aboriginal community in Canada. Health promotion international, 19(3), 317–326. https://doi.org/10.1093/heapro/dah305
Salmon, L. Contribution of foods to nutrient intakes of grades 4--6 students participating in Kahnawake Schools Diabetes Prevention Project, 1994, 1998 and 2002 [Masters Thesis]. McGill University, 2004
Jimenez, M. M., Receveur, O., Trifonopoulos, M., Kuhnlein, H., Paradis, G., & Macaulay, A. C. (2003). Comparison of the dietary intakes of two different groups of children (grades 4 to 6) before and after the Kahnawake Schools Diabetes Prevention Project. Journal of the American Dietetic Association, 103(9), 1191–1194. https://doi.org/10.1016/s0002-8223(03)00980-5
Macaulay, A.C., Harris, S.B., Lévesque, L., Cargo, M., Ford, E., & Salsberg, J.S. (2003). Primary Prevention of Type 2 Diabetes: Experiences of Two Aboriginal Communities in Canada. Canadian Journal of Diabetes. 27(4):464-475
Cargo, M., Lévesque, L., Macaulay, A. C., McComber, A., Desrosiers, S., Delormier, T., Potvin, L., & Kahnawake Schools Diabetes Prevention Project (KSDPP) Community Advisory Board (2003). Community governance of the Kahnawake Schools Diabetes Prevention Project, Kahnawake Territory, Mohawk Nation, Canada. Health promotion international, 18(3), 177–187. https://doi.org/10.1093/heapro/dag013
Delormier, T., Cargo, M., Kirby, R., McComber, A.C. (2003). Activity Implementation as a Reflection of Living in Balance: The Kahnawake Schools Diabetes Prevention Project. Pimatisiwin:  A Journal of Aboriginal and Indigenous Community Health. 1(1):45-163.
Potvin, L., Cargo, M., McComber, A. M., Delormier, T., & Macaulay, A. C. (2003). Implementing participatory intervention and research in communities: lessons from the Kahnawake Schools Diabetes Prevention Project in Canada. Social science & medicine (1982), 56(6), 1295–1305. https://doi.org/10.1016/s0277-9536(02)00129-6
(KSDPP as Case Study) Potvin, L., Haddad, S., & Frohlich, K. (2001). Beyond Process and Outcome Evaluation: a Comprehensive Approach to Evaluating Health Promotion Programmes. In: Rootman I., Goodstadt M., Hyndman B., McQueen D.V., Potvin L., Springett J., et al., editors. Evaluation of Health Promotion: Principles and Perspectives: WHO.
Horn, O. K., Paradis, G., Potvin, L., Macaulay, A. C., & Desrosiers, S. (2001). Correlates and predictors of adiposity among Mohawk children. Preventive medicine, 33(4), 274–281. https://doi.org/10.1006/pmed.2001.0881
Jimenez, M.M. (2000). Evaluation of dietary change among Kahnawake Schools Diabetes Prevention Project participating children (grades 4-6) [Thesis M Sc]. McGill University.

Publications 1990-1999

 (KSDPP as Case Study) Gibson, N., Gibson, G., & Macaulay, A.C. Community-based research: Negotiating agendas and evaluating outcomes. In: J Morse, J Swanson, AJ Kuzel, editors. The Nature of Qualitative Evidence. Thousand Oaks: Sage Publications, 1999.
Macaulay, A. C., Commanda, L. E., Freeman, W. L., Gibson, N., McCabe, M. L., Robbins, C. M., & Twohig, P. L. (1999). Participatory research maximises community and lay involvement. North American Primary Care Research Group. BMJ (Clinical research ed.), 319(7212), 774–778. https://doi.org/10.1136/bmj.319.7212.774
Potvin, L., Desrosiers, S., Trifonopoulos, M., Leduc, N., Rivard, M., Macaulay, A. C., & Paradis, G. (1999). Anthropometric characteristics of Mohawk children aged 6 to 11 years: a population perspective. Journal of the American Dietetic Association, 99(8), 955+. https://link.gale.com/apps/doc/A62115069/AONE?u=anon~e6910a36&sid=googleScholar&xid=5708bb4a
Trifonopoulos, M., Kuhnlein, H.V., & Receveur, O. (1998). Analysis of 24-hour recalls of 164 fourth- to sixth-grade Mohawk children in Kahnawake. Journal of the American Dietetic Association. 98(7):814-6.​
Macaulay, A. C., Delormier, T., McComber, A. M., Cross, E. J., Potvin, L. P., Paradis, G., Kirby, R. L., Saad-Haddad, C., & Desrosiers, S. (1998). Participatory research with native community of Kahnawake creates innovative Code of Research Ethics. Canadian journal of public health = Revue canadienne de sante publique, 89(2), 105–108. https://doi.org/10.1007/BF03404399
Macaulay, A. C., Cross, E. J., Delormier, T., Potvin, L., Paradis, G., & McComber, A. (1998). Developing a Code of Research Ethics for research with a Native community in Canada: a report from the Kahnawake Schools Diabetes Prevention Project. International journal of circumpolar health, 57 Suppl 1, 38–40.
Macaulay, A.C., Paradis, G., Potvin, L., Cross, E., Saad-Haddad, C., McComber, A., (1998). Primary Prevention of Diabetes Type II in First Nations: Experiences of the Kahnawake Schools Diabetes Prevention Project. Can J Diabetes Care. 22:44 - 49.​
Macaulay, A. C., Paradis, G., Potvin, L., Cross, E. J., Saad-Haddad, C., McComber, A., Desrosiers, S., Kirby, R., Montour, L. T., Lamping, D. L., Leduc, N., & Rivard, M. (1997). The Kahnawake Schools Diabetes Prevention Project: intervention, evaluation, and baseline results of a diabetes primary prevention program with a native community in Canada. Preventive medicine, 26(6), 779–790. https://doi.org/10.1006/pmed.1997.0241
Trifonopoulos, M. (1995). Anthropometry and diet of Mohawk schoolchildren in Kahnawake [Thesis M Sc]. McGill.
Macaulay, A. (1991). University-Community Collaboration in Primary Care Research. In: Bass, M.J., Dunn, E.V., Norton, P.G. Stewart, M., Tudiver, F., editors. Conducting Research in the Practice Setting. Thousand Oaks: Sage Publications.

Publications 1980-1989

Montour, L. T., Macaulay, A. C., & Adelson, N. (1989). Diabetes mellitus in Mohawks of Kahnawake, PQ: a clinical and epidemiologic description. CMAJ : Canadian Medical Association journal = journal de l'Association medicale canadienne, 141(6), 549–552.
Macaulay, A. C., Montour, L. T., & Adelson, N. (1988). Prevalence of diabetic and atherosclerotic complications among Mohawk Indians of Kahnawake, PQ. CMAJ : Canadian Medical Association journal = journal de l'Association medicale canadienne, 139(3), 221–224.
Montour, L. T., & Macaulay, A. C. (1985). High prevalence rates of diabetes mellitus and hypertension on a North American Indian reservation. Canadian Medical Association journal, 132(10), 1110–1112.

Connect with us on Facebook